So, it’s not a perfect run!! (this post didn’t publish correctly last week!) I have had a bit of onychomycosis (bloody nail fungus) for a couple of weeks which I had seen the GP about and was treating but when I saw my haematologist today my neutrophils were low (1.0) which caused him some concernContinue reading “Up yours nail fungus – Bit of a Neutropenia alert!”
I am well aware that I haven’t written anything here for a while but the truth is that I’m pretty boring …..! I am still, fortunately, having essentially no adverse reactions at all, I look well and, apart from some tiredness, I’m really OK! I have my next infusion of obinutuzumab in a week orContinue reading “I went to something recently and no one asked: “How are you Mick?””
Group 1B is up and running!
Finished with the pretty packaging just a plain old bottle of “horse pills” from now on!. I have finally arrive at the top of the Venetoclax ramp and have started the 400mg/day regime which will run until December. Again no real reactions so I am indeed fortunate. I have been very lucky to get thisContinue reading “At the top of the Ramp”
200 mg started this week! Heading for 400mg next week so we’re in serious territory!! Again, apart from the fatigue, there don’t seem to be any real problems so let’s hope the good run continues!!
Birthday Present on Tuesday!! The full infusion of Obinutuzumab went without a hitch on Monday, thank goodness; the 50mg Venetoclax went down a treat and the bloods were good!! There is so much to be grateful for with this magical stuff @luckysofar!!
Cycle 2 Day 1 tomorrow – aka Venetoclax 50mg and Obinutuzumab 1000mg Going very well, so far!! Just a little tiredness day to day and I’m sleeping better (but that might be just the early Autumn weather!). Someone I live with said: “You’re better to live with than you have been for 20 years!!” …Continue reading “First Day of Cycle 2 Tomorrow”
Not sure whether to open the tablets or the prawns first!!! After a slight delay of a day we are into the next phase. (We forgot to order the Venetoclax ahead of time and, of course, the Chemist had to get some in!! We’ll remember next month!) The packaging is little short of amazing (leavesContinue reading “Cycle 1 / Phase 2 Venetoclax @Home!!”
Back into Lifehouse at 10 for coffee before heading up to the Day Therapy where Catriona is waiting for the day. There was a bit of a wait while we discussed whether or not to have a blood test before we started – they rang the Doc and Christian said to have one but toContinue reading “Cycle 1 : Monday Feb 15th – 3rd Full Infusion”
Cycle 1 Thursday Feb 11th Following my emerging awareness of “how I feel in all this” I felt moved to write some reflections on “being ill”. I immediately recognise that other people have certainly written about this with much more skill, thought and depth that I can but, hey!, the role of this blog isContinue reading “Just a few reflections on a resting day between Infusions”